Monday, January 25, 2016

growing boy

On Thursday, daddy and miss may came back to Madison, what was suppose to be for the weekend. Unfortunately may got sick over the weekend and day care wont take sick kids... So parents shouldn't be sending their kids there when they are ill... when obviously some one did because now may caught it, and she told me what kid was sick at school last week so it isn't a great mystery how she got this... But anyway, she can't stay at day care and she can't be in the hospital so we were left the option of her and thiago staying here so one of us can be with each of the kiddies. It is unfortunate, but I'm happy to have them an extra day.

Sol has been working on gaining the last few days and he has been doing well finally! Average of 39grams the last 3 days, he even earned himself a fresh pumped unfortified feed since he has been gaining good weight! Hopefully this will help protect him from Mays cold, we have been making sure she stayed away since I suspected she was getting sick a few days ago. Sol also had a surprise for thiago and may, by being moved to a big boy bed! He is now in a crib and then on Friday he had a trach change and got a new trach that flexes more. It is soooo nice, he can be moved easier with out the vent pulling on him like crazy. He looks way more comfortable than he did with his previous trach. We have been doing trach cares each day and starting our sheet of things that need to be done before going home. Today we set up classes for learning about the trach, mandatory classes even though we did this before. But that's fine, good to get a refresher.

This week pulmonary will come by to take a look at him and hopefully discuss trying to get him on the home vent now that he has been gaining weight and healing really well. He is growing up! He is officially a month old now! It would be wonderful to see if we could get him home before he is 2 months old, while it is probably unlikely and I'm not holding my breath on this, I still have a slight hope we may be able to accomplish this. We will see.

Yesterday I was holding him, he really dislikes being held on his right side, he prefers his left all the time so we are trying to get him use to the right. He was getting pretty frustrated with me though because he was already held on that side by daddy earlier that day. In his frustration he was kicking his legs so much, and looking at his face, I almost forgot anything was wrong with him. I can't wait for his legs to become less contracted, the possibilities of what he can do, with how well his legs move, could become endless! He sure has impressed me with his leg movement and how well he tolerates position changes. Yesterday the nurse told me how much he has surprised her, she thought he would be here until April for sure, but now she knows that wont be the case. He is moving along and hopefully will continue to only improve, is my really big wish here.

1 comment:

  1. Awesome...I am so happy to hear about the new trach. and all of the movements Sol's legs are making. This is such encouraging news which is good to reinforce our prayers. I am praying May gets well quickly. I feel bad for her because I'm sure she hates being away from Sol. You are all always in my prayers I Love you all....

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