We were never really able to hear Lua cry, just a few times, but was very faint and not often at all. Sol has that huge stoma and is able to pass the air through the huge leak, so we get to hear his voice much more often than we did from Lua, and it is soooo nice. It is sad, but so sweet to hear him cry. That is one thing I really wanted, I wanted a loud crying baby! I didn't think that meant he would have the trach, and although he isn't super loud, any noise from him is appreciated!
Today he got a bigger size trach to help with the huge leak that is going on and to hopefully help the trach to not fall out just by looking at it. It was a little worrisome to do this upsizing because we dont want his stoma getting any larger, they said his skin is really fragile which is why his stoma got so large in the first place.... I dont know, I'm surprise he has this new symptom of such fragile skin that we didn't have with lua, guess he really wants to just be his own person and not let us use the information and experience we had with Lua to guide us with what to do with him. We had to have another feeding talk because his weight dropped last night again so he is struggling with nutrition, another problem we didn't have with lua. So fortifying more with a different formula that will have more iron and crap in it. So I decided if they are going to keep on this then he needs to be getting fresh milk. They have a milk lab here that wants to do everything with the milk, it is safer I guess. But the more stuff that happens with breast milk, refrigerating, reheating, mixing, that can cause nutrients to be lost, which is why I requested he get the milk I just pumped fed to him so he is getting the best quality of milk possible. Lua got fresh milk all the time and I am suspicious if this is where his struggle may be coming from or it is at least not helping. So we will try that even though it isn't easy for the milk lab to do so things have to be rearranged but oh well.
Daddy got to hold Sol on his side to his chest during ot/pt therapy today, this will help prepare or get sol use to doing some kangaroo time, skin to skin. He tolerated the change pretty well, only upset for a little bit but surprised me with how well he handled the transition.
His first trach change was uneventful, thank goodness!!! He was pretty upset, who wouldn't be.. But he is resting and getting a break from everything for now. Speech will be coming at 3, so hopefully he will be all rested up for his next therapy.
next big plan for him is to start growing.. Apparently if you want to get out of here you have to be gaining weight! The only time and place that it is great for you to gain weight, being an infant and in the NICU.
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