moving day

I really haven't been in the mood to make many updates, I haven't had time, or a chance to get to my laptop which I prefer because it really sucks typing on my phone! Also not very much has been going on.
I was discharged from the hospital Dec 26th, 2 days after having Sol. We had our Christmas in the hospital room and then we were able to give Sol his presents too! Anyway, I'm very uncomfortable in hospital beds so since everything was going well with me I decided to go ahead and go home. We are close enough to Neenah to get to the NICU, and we knew we would be transferring to Madison soon, so I wanted to go home and pack and clean up before we leave and not know when we will return.
So that's what we did. I was not prepared for the pain you have after a csection though... I keep trying to act like it was just a vaginal birth and I can get up and go as I please, but really has not been working out.
Sol had been doing fine. He is intubated, on and off small amounts of oxygen, lower vent settings, but some of his lung did collapse. Probably because after his arm was broken from them trying to put in a pic line (or IV), he needed to be put on his other side to help the discomfort of his arm. Poor baby was so sore whenever you would touch his arm, I knew something wasn't right. They tried to tell us it was from birth but we saw xrays that were taken a few hours before the pic line was attempted and there was no break.. After they attempted, break, so seems pretty obvious it happened at that time. The neo. Came to me yesterday and said he has fragile bones.. I did correct her and say, since everyone is comparing him to lua, she did not have fragile bones so with out a test being done I wouldn't be so sure that is true. She said that is the only explanation because the nurses put in the lines all the time and they have never broken a babies arm, even in 26 week old babies..... Later she came back to say they were going to test his bone density and should have results today. I haven't heard results yet... But with how badly they want to disprove they caused it, makes me want to look into pressing charges or something, they have become very admit that there is no way this is their fault..... Which this has been a very big set back for us because he was then put on morphine for the pain and now that he had it once, that is a go to thing for him whenever he is in discomfort instead of Tylenol which I have requested over the morphine numerous times. Just a mess... I did spend the day with him yesterday, and he certainly can get in a lot of discomfort. He is disliking his breathing tube, pushing on it with his tongue and creating a ton of secretions in his mouth, which makes him uncomfortable which makes him cry, which makes more secretions... And it goes on! Uuhhhh nothing breaks my heart more than not being able to comfort him. He demanded, I'm serious... Demanded.... Qtip with breastmilk on it... If I took it away he would cup his little tongue and just crrrryyy!!! We had about 3 hours straight of fussing. So I did see why the nurses jumped to morphine, but his crying is good in my opinion.. Just annoying.
today we should be heading to Madison..we have been warned over and over that if his breathing tube comes out during the trip they can not guarantee that he will survive the ride. I personally think he has become easier to intubate so he may surprise them... But I'm insanely worried about the drive for him. I'm hoping they may allow me to go with him incase something were to happen... We will see.