Tuesday, September 22, 2015

More appointments

Another ultrasound appointment is coming up next week already. It is a very early morning one, so I am interested to see if anything has changed. I just recently read the write up from the doc on the last ultrasound and found out some things that I didn't know. They believe that our baby is club footed, and he also has some fluid on/in his head, about 1 cm so I think that is what they may be wanting another ultrasound for, beside that his head was flexed down and if he stays like that he will develop contractures in his jaw. neck, and stuff I guess. Sooo that is where we are at now I suppose. 
Each day has been sort of a struggle, and about the time we are feeling better we have an appointment and find out more bad news. I think that is what the hardest part is, having to be beaten down each time with the facts of what we are looking at. But it is what it is. If I could change my genetics I would do it in a heartbeat. If I could change what happened to him, I would have done it months ago. But not much I can do at this point.
I have gotten some ideas of what to do to help baby move, the more active he is the better it is, so we are trying to keep that up. We are trying to work out what type of experimental trials or drugs that are out there that we can give him so he has the best chances possible. My hopes are to stay proactive, prepare for the worst and hope for the best.
We will probably be looking at Madison and seeing how we like it, if we like it enough we will probably deliver the baby there, the next thing for us is to decide what hospital will be best for us. I don't think we had the best care while we were in milwaukee so it would be nice to look at a different hospital and maybe have a clean start, but if it looks like it wont work with madison we will probably have to head back towards milwaukee. So i suppose we have a few months to figure everything out. 

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