trip to home.

I finally have gotten a chance to get to my laptop. Feels great to make an update while typing on a keyboard and not my silly phone! But it is not for a really good reason that I am able to get to my laptop. We are having a hard time catching a break with sicknesses. I am still trying to get over the cold May got two weeks ago! Then this morning, May ended up throwing up at the hospital. We arent sure if she caught a stomach bug, or if it is food poisoning. We both had some english muffins for breakfast, after I ate it I felt really nauseous but it went by pretty fast, she didn't end up throwing up until 2 hours later. It is hard to know what is going on, but for Sol's safety we decided that we would all go back home for a few days in case we all get infected with this possible bug. It is taking me so long to get over this cold, I don't even know if I can handle a stomach bug on top of it all so I don't want to try to push myself and make things worse. May had been throwing up about every two hours after she threw up the first time. She threw up once on the ride home but hasn't puked any more since, I am hoping she will be done with it now. It is very hard for me to be away from Sol. I am just too weak to the fact he may be in his room crying and no one knows, and no one will be there to hold him :( it breaks my heart! Thankfully, my wonderful parents stepped in and were willing to go there tonight so my mom can be with him the next few days while we figure out what is going on with May. I am so thankful, other wise I would probably be here crying missing him and him being alone! I know the nurses are good, but they have other things to do, they cant spend 10 hours straight with him like I do or my mom can do. I feel so much better knowing he has someone there for him.

We did have a nice visit with my cousin this morning before the puking fun began. Sol is a little easier to hold than Lua was, her big head made things a little trickier to hold her, but Sol has this insane short small neck and is a pretty good cuddle bug, so our visitor got to hold him today, which is good that he had someone to hold him while we ended up dealing with the puking fit! That was a nice help to have another set of hands to hold and help him get out of his crib for awhile. 

If I have to be home, at least tomorrow I get to see our doggie for the first time in 6 weeks! If he understood death, he probably thinks I died because it has been so long since I have seen him. I'm not going to lie.. I am a little excited to see the pup! I hope May is feeling better by tomorrow so she can enjoy seeing Mallo too! 

I can finally put a picture on here of Sol and how much he has changed. His arms have gotten a lot more relaxed and loose. His legs are still pretty high and tight, I think this will be a very long progress. I was just talking to Thiago about the possibility of him needing to have casting done to help his knees, but I remember hearing an ortho doc say how you need to take into consideration the consequences of what the casting. Casting will make things heavy and limit movement and he is in no shape to be having anything that limits his movements and giving him more possible muscle atrophy. I don't think he is that bad to need casts at this point and I think he is too weak to have the casts be beneficial in the end... so that probably wont be the case, I Know it isnt the case right now... if some how down the road he gets very strong and his contracted knees become something that limits him from walking or crawling one day, they may consider it at that point I'm guessing. He also had his hip ultrasound last week, it sounds like they are exactly how Lua's were. They haven't heard from ortho, but the reading said they were barely in socket. The way they explained it for Lua was the hip ball was in the socket but the bone didn't make a strong enough groove into the socket so it was very possible for her hips to come out at some point. That sounds like it is the same case for Sol. If his hips are out, we won't do anything, possibly ever. You can walk with dislocated hips, they arent suppose to cause any pain, so as long as he isnt in any pain and if the possibility to walk comes up one day and the hips are stopping him (like the knees again) than surgery would be necessary. But right now they are going to do my favorite thing which is just to keep an eye on them and wait to see what happens. They don't do surgery on hips until age of 2, I believe anyway, we have time. We need to focus on the breathing issue and getting bigger and stronger and keeping away from any sicknesses that may come up.

Speaking of breathing, Sol has been going strong with his trach collar trials. Today he did 45 mins off the vent. He can do 2x a day but because we arent there I figure maybe he shouldn't do it while no one is there just in case something comes up, I want to be there to know what exactly happened. I don't think anything would, but just in case. Maybe tomorrow if my mom can be there for both times, we will see. He is getting close to an hour 2x a day. That is a pretty good. I am not really in any huge rush for this trach collar, I would love for him to be off of the vent during the day for good, but since he needs to grow and get stronger to be able to go to the home vent so we can go home, I feel like we need to work on that first. His volume that he is pulling in is getting bigger and bigger, which is great, it really shows that he is growing and his lungs are doing good. I am so proud of him, he is so much stronger than I could ever be, that is for sure!

Love my little dude, ugh I miss him already...  

Seconds old 

2 Weeks

1 Month 

6 Weeks