This last week we were suppose to try the home vent, but there is a pretty big break out of RSV at the hospital and the pulmonary doctors have been buuuusy. So we had to wait for a pulmonary doctor before switching him over, and that happened on Friday. It was suppose to be Wednesday, but the docs were too behind, which was fine because sol had a pretty bad day. He spent most of the day being held and crying. Then it was going to happen Thursday, but he ended up getting his vaccines on Thursday because Wednesday was such a hard day for him.
I also dont want to be judged on this topic of vaccines, I think as parents we all decide what is best for our kiddos, and I know how big of a controversial topic this can become, but that's our rights as parents and if someone out there is thinking he is worse off because I did or didn't give him vaccines, kind of too late and doesn't matter. Just as a side not there.
Anyway, no one wanted to stress him out after having that done. So Friday was the day we switched him over which was nice because thiago then got to be there for it. But it didn't go as planned. He seemed uncomfortable, and he looked better off the vent then he did on the vent and it was just weird so they switched him back to the hospital vent. The respiratory therapist then decided they wanted to wait until a pulmonary doctor could come see him on the home vent before trying it again. That happened today. Our doctor came over and put him on it this afternoon and things went well but she kept calling him a show off because he really doesn't need the vent very much anymore. She just wants him to have it to give him a break while he is sleeping. She gave the go ahead to stay off the vent for as long as he can tolerate, which has been about 7 hours now. We will see how he does tonight and tomorrow, but after 5 to 7 days is when we will move to the other side. We cant go home until he is 5 kilos, I really thought I was told it didn't necessarily have to be 5 kilos but I've been told many times this week that it most certainly does... Oh well. The kid is gaining weight like a mad horse so I dont think it will take forever for him to get there.
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