we have been coasting for a few weeks now... Waiting on the weight gain to get to the home vent and then move to the step down unit. So we are waiting and waiting... Sol is doing his part by gaining every day. He is currently 3718 grams so he is getting close to that 4k mark. He has been pretty stable ever since. No issues with oxygen going down or heart rate dropping too low, he is just chilled. Sometimes staff forget he is here because he is just coasting away.
After we came back to the hospital from our few days off, sol had a new trick for me. He has started to move his thumb, that same evening we saw his thumb move, he also moved his arm down when thiago apparently positioned it somewhere he didn't want. Slight movements are very exciting! He is up to an hour and a half off the ventilator 2x a day now as well. This gives us some freedom of what to do with him since he doesn't have to be locked down to the vent. Very exciting. Today was the switch to the hour and half so they are going to be really looking at his weight gain here and if it isn't good tonight they may be worried to go up anymore for now. Hoping for some good weight gain this evening.
Earlier today he went in his car seat and he did fabulous. He really liked it. He slept some but tolerated it very well. If he wants to go home in a car seat he will have to tolerate 2 hours of it.. But I think he will be fine.
May has been with me at the hospital so far this week, dont think we will do that again! It is tricky to deal with both of them.. Mostly because I have to run up and down stairs to get her and drop her off for the child care they have here, and in between pumping and therapies, whew, wears me out just typing it. Hoping these weeks in the nicu could be over soon. This hospital life is really starting to tire me out in general. But I dont really think being home will be any easier but it will be more togetherness.
time to take a nap! Ha, I wish. . .
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