But pictures always help...
Friday, August 21, 2015
Ultrasound with baby #3
Yesterday we had our first ultra sound with the specialist.... During the ultrasound the geneticist who has been working on Luas case called with some information and a shortly after that the specialist doctor came in and said they believe they know what Lua had. Limb girdle muscular dystrophy. Which is a recessive disorder which means both parents have to have the mutation to pass it onto the child. That keeps us at having a 25% chance this baby has the same condition. And during the ultrasound there were some concerns about the baby's movement. Movement in the arms and wrists wasn't seen. The baby did move his legs a little at the end... So now with this new information they would like me to have an amnio test done to see if this baby has the same condition, and also I have to go to Milwaukee for a follow up ultrasound next week to check on the movement of the baby. Stress galore! The thought of it happening again is unbelievable. There is a bunch of things that need to be done to confirm lua had this disease but if they are able to then that means if we want to have any more kids we will always have a 25% chance of it happening again. Next week we should start to hear a little more on everything. But it seems now ill have to continue going to Milwaukee and who knows if ill be able to deliver at our local hospital or if it will become a forced csection in Milwaukee where the baby will be taken right away to be checked on... Who knows... Super awesome stuff..............
Wednesday, August 12, 2015
Just updates
We are settling in to our new house. With all my doubts on if buying a house was a right thing or not, I have come to the conclusion it was a very good decision. We are paying less on payments than if we were to have rented the house we looked at before finding this house, and after what our last landlord has done to us with claiming we trashed his house, I am SO So happy to not have to deal with any landlords anymore! I still can't get over how much of a sneaky jerk our last landlord and his wife really are. They never told us of any problems with the 50 year old + house while we were living there, and they went inside frequently. They didn't call us and tell us of any issues after we moved out so we could go and fix anything. I had 3 people helping me clean that house, it was WAY cleaner than when we moved in, they didn't touch that house before we moved in and now they are all mad because they have to paint, clean carpets, (which none of that has been done in at least 3 years or more) and fix water damage that we had continuously told him about. I even cleaned those carpets twice while we lived there and once on the move out, 3 times! I can't be to blame if they put in a LIGHT blue carpet, what do you think is going to happen?? Carpet doesn't stay pretty for long! And it has probably been in that house for many years, So they use our security deposit to remodel their crappy house. Insanely wrong! Now we have decided to talk with a lawyer and see if we should move forward with anything or let it all go. I just can't believe people can be like this. They had a fit because the screen was broken, well the screen was broken because the cop had to break into the house the morning Lua passed away because on our rush to the hospital no one brought any keys. I don't mind fixing it, and he could have easily said, oh can you fix that.. Ok sure. But to act so mad about it, when you know why it was broken is just so heartless! Sneaky, sneaky, sneaky. Make you think they are your friends and then when it comes to money they screw you over. We could have not paid the 3 months we weren't living there while we were in the hospital. We could have really trashed the house, we could have been so difficult like so many renters are, but we werent! And we have never had a problem with any landlord before, this is just outrageous to me and so insanely stressful, so I handed over the whole issue to my husband and deleted the landlord from my phone, and blocked him. Just can't believe what a lying jerk he became. He did the same thing to the girl who moved out before us, might I add.
But anyway, moving on...
We still have no internet, so life has been interesting, this is how the other world lives! Right now we can use our phones, and hot spot on our phones but when I really start up with tshirts again the hotspot wont be enough anymore. I guess we are in too new of an area, one family has been living here for 5 years and they still dont have internet. But it really could be worse. It is nice not knowing you can be on netflix all day, or online all day. More outside time, more family time, if it wasnt for needing internet to do shirts, we may even consider keeping it this way. Truly getting away from it all.
But anyway, moving on...
We still have no internet, so life has been interesting, this is how the other world lives! Right now we can use our phones, and hot spot on our phones but when I really start up with tshirts again the hotspot wont be enough anymore. I guess we are in too new of an area, one family has been living here for 5 years and they still dont have internet. But it really could be worse. It is nice not knowing you can be on netflix all day, or online all day. More outside time, more family time, if it wasnt for needing internet to do shirts, we may even consider keeping it this way. Truly getting away from it all.
May had her big birthday celebration on August 2nd. Her friends and Cinderella had a tea party! The girls totally loved it! It was really an amazing day! I'm so glad she had a wonderful day after the current year she had. Unfortunately, she wont be getting a birthday next year because there is no way I could ever do a party better than this years! One little girl was saying, "We are in Disney Land!" Hahaha they all had such a great time. And Cinderella even sent them a card later in the mail thanking them for the tea party! Besides the two rain storms we had briefly, everything went very well. I will hopefully try to attach some pictures if internet allows.
As for now we are just moving forward, getting use to all these adjustments. Last doctors appointment the baby looked well, heart beat was good and we even heard the baby moving while the doctor was taking the heart beat... little thump thumps. We have our 20 week ultra sound with the specialist Aug. 20th, hoping everything is looking good at that point and we can see our little boy. I'm anxious for this ultra sound and wish it was just here already.
And as for Lua, well, she gained a cousin in heaven to spend time with her. I hope they have met each other, along with her great grandpa and he's grandpa. I hope it has been a great reunion. We will certainly miss Shawn. 29 years old, gone way too soon, it is still pretty unreal and unbelievable that someone so young could go so soon so unexpectedly. Funeral will be Friday and maybe more willb e written then.
As for now we are just moving forward, getting use to all these adjustments. Last doctors appointment the baby looked well, heart beat was good and we even heard the baby moving while the doctor was taking the heart beat... little thump thumps. We have our 20 week ultra sound with the specialist Aug. 20th, hoping everything is looking good at that point and we can see our little boy. I'm anxious for this ultra sound and wish it was just here already.
And as for Lua, well, she gained a cousin in heaven to spend time with her. I hope they have met each other, along with her great grandpa and he's grandpa. I hope it has been a great reunion. We will certainly miss Shawn. 29 years old, gone way too soon, it is still pretty unreal and unbelievable that someone so young could go so soon so unexpectedly. Funeral will be Friday and maybe more willb e written then.
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