If you don't follow articles on the mighty, I highly recommend it. They typically have something that covers for everyone, because face it, we have all been through something. Today I read an article about suicidal thoughts, not wanting to die but just not wanting to exist, and I thought it was a really good read. Here is the link.
http://themighty.com/2016/07/suicidal-thoughts-but-not-suicidal/?utm_source=Facebook&utm_medium=Mighty_Page&utm_campaign=MENTALHEALTH
But at the end, I read the comments from other people, like I always do, and I read someone who said they feel exactly like this. They have two young kids and some days they just don't want to disappear and go to an island and be alone. It is funny, I know what the chick means and how she feels. I remember feeling overwhelmed some days with just May! It is funny now, though, because that persons nightmare is my dream! Their thunderstorm is my rainbow. What I wouldn't give to have two young perfectly healthy kids that are overwhelming me. I only know that this would be amazing because I have like one of the worst options in the world. But I feel like this statement holds true.. my thunderstorm is probably someone else's rainbow. I don't know who, but it could be. Maybe someone who can't get pregnant at all would love to have a medically fragile child after losing one child. I don't know...
Sol had his first sleep over at grandma and grandpa's house last weekend. It was my 10 year high school reunion - old - and then my great uncles 90th birthday party the next day, so we figured it would be easier to go for over night. Sol did well, but we had some heater problems with his vent. He didn't seem to care though. He did okay at the birthday party, he needed a little more suctioning than I would have liked but... BUT! He got his first tooth over the weekend!!! So the suctioning was understandable. He cut the other tooth by tuesday, so the kid has been busy getting these teeth out! He now has two bottom teeth, and it seems he is working hard to get the top teeth out as well. He has been so very cranky ever since the second tooth popped out. We will see what the weekend holds for teething.
We had a few therapy appointments this week, we tried to go to speech therapy twice but we just went on the wrong day.. oops. I am currently not a fan of our out patient speech therapist, nothing compares to what we were getting in the hospital, but it is seeming like yet again we are getting therapist who feel like since there is so much work that needs to be done with him that maaaayyybe it is just too much to do. We were asked what our goals were and if we were making sure to be doing things for his quality of life vs our quality of life, because you know, he doesn't know that he is being tube fed. One that is a lie he does know it because he loves when you put food in his mouth, and second of course everything we do is to make life better for him. I was really upset that she said this because to me it sounded like "im really lazy and I don't want to work with someone that i dont think ill get results from"
I dislike this so much. But we will see what happens, either we move forward or he goes backwards and then we will just quit.
Sol goes for some more appointments the end of this month and then we will be setting up a time to start his casting. Busy end to this month, and I think August will be pretty busy as well!
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