Wednesday, March 9, 2016

getting closer.

Today we had our delivery of our home equipment and our training on it. I really appreciate that they met us before Sol came home because with Lua the equipment company met us the day we were discharged and went through all the supplies we would need for that month and all the manuals of all the equipment, and it was a terrible drive home from Milwaukee and I was so overwhelmed, I just wanted the chick to leave because I wasn't listening at all after 30 mins... Today was a lot less stressful, a tad bit overwhelming, but we will go back to the hospital with all of our stuff to get a lot of use and practice on it before we come home so we should work out all the glitches we may come across.

So we are getting closer and closer to getting home, hopefully anyway as long as nothing comes up. We organized all our supplies and equipment this evening and have his room pretty set up for when he comes home. It seems really scary to bring him home, but we just have to do one day at a time and hope for the best... I'm going to have white hair caused from stress in no time here.. if I have any hair left to turn white.

We would have gone back to Madison tonight, but tomorrow is May's spring concert and I really wanted her to be in it, so we are staying another night so we can do that tomorrow. I am pretty excited for her, I went to the practice for the concert tomorrow and those kids did SO good. Those teachers blew me away, they have a ton of kids they are working with and they have it so together I can't even believe it! May did NOT want to be in the concert, but after practice today she is really excited and that makes me even more excited, I can't wait to go! I really wish this could be a situation we could take Sol with us to her spring concert, but we can't not just because he is in the hospital still, but it just isn't a good idea. So it is important that we know we still need to do these things and how important these things are, not just for May but for us, and for Sol in the long run as well. It really is unfortunate we don't have a baby that can go everywhere with us, but it isn't what we were given in life and at this point we have to make the most of what we have. I started to feel some overwhelming feelings during our training with the home equipment, but I quickly had to push those feelings aside and remember one day at a time and worry about problems when they come up. Can't change the past and can't dwell on the future it just isn't good.  So, anyway, We will have a great night tomorrow night and I can't wait! 

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