There have been a lot of changes in the last couple of weeks here. Our nurse that we had for almost 3 years took a new job at a new company, so the last month or some, we have spent trying to replace nursing. During that time that we had no nursing, Sol was going everywhere I went! Grocery shopping, picking up May from school, well those were basically the only things we were doing but it is a haul to bring him all around with me. It is a little good thing bad thing type deal, it just takes me longer to load him and unload him so I have to really watch my time. It is great for him though because it helps him experience many things and also helps to get his energy out. Again, good thing band thing going on there. Left me very tired by the end of the day from trucking him all around, and he has really been into me holding him and walking around with him, so every day he tells me, "mama walk" but he gets heavy fast! But I have still been doing it, I see a bad back in my near future probably, haha.
Last week we were finally able to get some nurses on board, this time I have two nurses which has been a little confusing on who I have trained what on, but we are coming along and hopefully will be able to get a routine going again soon, yet now I'm missing taking Sol everywhere a little bit! No nurse on fridays right now so I guess that is mine and Sols day to go out and about.
Last week Sol got his motorized wheelchair dropped off for him to start trialing. I had a lot of problems with it at first, getting use to it all, but the more we work with it the better it has been getting. He loves driving it! It was going way too slow for him, though, so we had them come back and bump up the speed. He was pretty happy with the speed of it yesterday, and every day he has been asking to sit in his black chair. Although we aren't able to travel around with it yet since we don't have an accessible van, but he just has to learn how to control it right now anyway. We probably wont be getting our very own wheelchair for many more months yet. Maybe in time for school next fall.
Speaking of school, Sol is enrolled in summer school where he will actually go to the classroom. I don't know exactly what this will look like yet, we have yet to work everything out with it and apparently it is hard for me to come in to take him as a parent because of it being a special needs classroom and they just made a rule that no parents are allowed in those rooms to protect the privacy of all the families that have children in the special education program. Which, personally, I think is really odd... I just don't think parents that have kids with special needs, really tend to go around blabbing it to everyone?? I suppose maybe, but I always use it for extra resources! I don't know it is all really weird, and it has stopped Sol from being able to go to school the rest of this year because I would be the one to take him, so I guess the principle has to figure out something to make it work... Whatever, I'm not sure on all of that, I'm just kind of going with the flow on it.
But anyway... I guess that is the basics of the updates for now. I could go more in depth on some topics but a little short on time.
Until next time!
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