I started this during mays spring break but didnt get very far, like the only thing i had down was .... spring break. I'm going to leave it as spring break though. I didn't write anything because i felt myself getting very depressed and only wanting to talk about the bad things. I have spent weeks trying to pull out of this little dark spell and im starting to feel better in some aspects of life. Others not so much but at least the 'other' issues are things I assume everyone goes through.
Well spring break for us was very fun... except not. I started out our week before spring break with strep throat. Causing us to miss our big genetics and neuro clinic. We cant get back into that until September so i am so seriously disappointed with myself that i had to get sick that day. The next day i spent recovering, and then it didnt take long to spread to my husband. At that point i called the doctors and asked for all ov us to get antibiotics. We had so many appointments coming up i was trying to get us to at keastba few of them. On top of appointments, i felt so deathly i couldnt imagine what would happen if sol caught it too. Our family doctor did inform me that it was rare for kids under 2 to ger strep so that made me feel a bit better. Nevertheless, towards the end of the week three out of four of us were on antibiotics with sol being the only one safe. That was until the week of spring break when he woke up super suctionie. I spent the whole day doing a ton of breathing treatments on him and coughs galore. I dont think he had strep but they aren't positive, we did end up doing antibiotics with him too just in case. I spent that night, after getting up at 4am, doing his air way clearance treatments until 1 am becuse this sickness had the secretions going right to his lungs and i was trying my hardest to avoid being admitted to the hospital. At 1 we did the switch and at 6 i was back at it on clearing his secretions. He was able to stay out of the hospital, but it took a long time for him to start to recover, i was starting to have my doubts! By the end of that week, instarted feeling miserable again. One night while i was suctioning sol and checking to make sure his lungs were cleared, I felt as if strep was coming back! By morning i couldnt talk. Called the hospital and they were very doubtful that i had strep again, but i was feeling so bad i had to go in. Sure enough, strep again. 20 days of antibiotics! And now at the end of those I started to have a skin reaction, so it has been a blast lately!
Now on the mend, we have had appointments to make up for, extra work days to put in, and sols typical nurse left for maternity leave the end of the week of misery. It has been an interesting week to say the least. Sol had his swallow study this last week and it was very interesting, he failed, but it qas interesting. They decided to do baby food by spoon and not a bottle which we had been practicing on, and he did attempt to swallow the food right away and the first swallow went down but the remainging stuff he silently aspirated. So he cannot do anything by mouth as of now ans we will do a repeat study in 3/6 months or so. We know what to work on now ans hope we can get him there. It would be wonderful to get him to eat a few bites by mouth!
Well thats a lot to update on for now and it is taking me weeks to do so thats that.
Also most of this was written on my phone. Forgive the errors ill have to fix when i see a computer again.
