oh boy.

Oh boy, oh boy... This week has started off, well just started off. My hardest struggle with having all of Sols conditions is the fact that it is really needed to have an extra set of hands, nursing. Home nursing is very difficult. With Lua I went through three nurses and I didn't truly like any of them, none of them were good with her and the agency was awful to me. So I left nursing behind when we had Lua. This time we have had two really good nurses, one nurse was someone who only came in for a couple hours, and then we have our regular nurse that pulls more hours. The agency has gone through a lot of changes and making a lot of things difficult for a lot of the workers there. This results in me being with out nursing. I can do a lot of things on my own, I usually do, but right after we get into a good routine something has to get messy to make life even harder. I guess I just got spoiled with having the extra help. I so badly wish I could just do more with Sol, if only he required less suctioning that could make things so much easier. But we have to do what we have to do because we get no other choice. It is only Tuesday, unfortunately, yet the show must go on.

Ugh, ugh ugh... 
But since the show must go on, we started monday off with taking May to the dentist to get a second opinion on what to do with her cavities. She did spectacular at the dentist too! This has always been hard for us, she has thrown many fits, one dental hygienist told me she needs to learn how to behave appropriately at the dentist, when she was three, because she cried while they tried to look in her mouth. We kept trying to tell them that if I go back with her she will do fine, but at first impressions they don't allow that so they end up with May crying and not letting them take a look. Now we are so far behind in treating her problem teeth that we have to go to the O/R to take care of all the teeth. It is so frustrating, and I'm not saying we arent at fault for not brushing better, but they spent three visits of her crying and not looking at her teeth! Yet at our appointment yesterday they let me go in with her and she didn't cry, she opened wide, and let them get everything done that needed to be done. Shocker. I'm not sure when things took a turn where doctors feel like parents don't know what is best for their own children.

I suppose I shouldn't go on, little sleep and lots of frustrations means bad words coming out and bad opinions.

Here is to friday!